My first CTC test results are in!

Nov 2020 1st CTC Results: 10 ml of blood 3.3 CTC/ml incl 1 cluster. Specimen contained single CTC (n= 16), and one cluster of CTC-like cells with 17 nuclei (n=17), total CTC (n=33), suggesting some residual disease activity. The background shows mild to moderate numbers of immune cells and occasional fungal elements. The CTC count is consistent with a mild to moderate increased risk of tumour progression or relapse.

I am thinking this is not too bad. Still room for improvement (especially re. fungal elements) but really great news worth celebrating. I will continue to pause the Zoladex for now and keep up with immune system and anti-inflammatory focus while pulsing the pathways inhibitors.

March 2022 note: I did end up stopping the Zolodex all together – did not go back to it and have continued with Melatonin which is now 60mg a night and every now and then I will pause it for 5 days and then re-start. My tumor markers remain the lowest of all time and all labs are looking really good. White blood cells were terribly low for years but have come back up to the normal range in past few months. I am living a very active pain-free life, practicing Qi Gong and working as a mental health outreach support worker. Having bone scans once a year and next one due in early May 2022.

Bone healing:

Many women who read this blog have a similar diagnosis to me and write to ask me about what I take each day in regards to my bones mets . Here’s my bone healing list of supplements and studies. None are strictly ‘bone only’ and all have multiple anti-cancer targets.

Melatonin

I worked my way from 3mg to 20mg then up to 180mg nightly. Melatonin influences bone metabolism by stimulating bone growth and inhibiting osteoclast activity. Oral administration of melatonin contained in drinking water increased bone strength in naturally aged mice. Nowadays I am taking 60mg a night. I also use a red light belt for 10 minutes before lights out and that helps me with sleep (at least I believe it does).

https://www.sciencedirect.com/science/article/abs/pii/S0065128120300957

Buying from: purebulk.com/melatonin


Black Seed Oil (Nigella Sativa) 500mg x 2,  2-3 x day

Thymoquinone Inhibits Bone Metastasis of Breast Cancer Cells Through Abrogation of the CXCR4 Signaling Axis

Bone metastasis was found to be significantly suppressed in the TQ treated group.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6288203/?fbclid=IwAR1jcXvuJQ_-oScrt5FeWsGcLZDX-BFAPO5KSRBx3dd8zvmkEWLRklvD4x4

Buying: Capsules not liquid at iherb.com I take 1 in the morning after breaky and one at night before my melatonin. https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC4632252/


Citrus Bergamot 500mg,  2- 3 x day

Bergamot Polyphenol Fraction Exerts Effects on Bone Biology by Activating ERK 1/2 and Wnt/β-Catenin Pathway and Regulating Bone Biomarkers in Bone Cell Cultures

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6163325/?fbclid=IwAR0VVPmLLuLMrYcxdXXn2jF4NV5Hn0Y-3U4ybFvqkyh3AoPlcj3KeWcwswM

Buying: O once used iherb.com Jarrow formulas and when finished moved to the new MCS formulas World’s best QUALITY from Italy here: MCS


Liposomal Baicalin (Chinese Skullcap)
1 x 200mg caps 1-2x day

Nowadays : Liposomal Baicalein (Chinese Skullcap) 1 x 200mg capsule ,  1-2x day w/out food if possible Before this MCS Liposomal Baicalein was available I took:  this one and a local herbalist tincture too: 
Buying:
I now use this one:  1 x 200mg capsule 1-2 x day
MCS formulas ships worldwide.
Use the coupon code
abbey5 at the checkout for 5% off your MCS order.

Bone-protective and anti-tumor effect of baicalin in osteotropic breast cancer via induction of apoptosis

https://link.springer.com/article/10.1007/s10549-020-05904-y

Baicalin Ameliorates Bone Cancer Pain by Suppressing TRPV1 in Rat Dorsal Root Ganglia

https://journals.sagepub.com/doi/full/10.1177/1934578X19899562


Grape seed extract 95% proanthocyanidins
450mg x2, 1x each day

targeting abnormal bone metabolism to alleviate bone metastasis of breast cancer.

https://pubmed.ncbi.nlm.nih.gov/31625993/

Buying from: Purebulk.com
I’ve stopped taking but took for a couple of years 2019-2021

Andrographis 200mg 1 x day

A potent inhibitor of breast cancer-induced bone metastasis.nhibiting RANKL-induced NF-κB and ERK signaling
https://link.springer.com/article/10.1007%2Fs10549-014-2844-7

Available from: iherb I actually make my own capsules with local herb suppliers’s powder and take 1 x 500mg each morning with breakfast.


Algae Cal plus

I used Algae Cal plus the first year too. I think it was super helpful to use such a high quality bone supplement. AlgaeCal products used in 2017-18 for about 12 months and I find this is similar bone restore mix from iherb
The Algae cal product I used was this one: AlgaeCal plus.


Liposomal Vitamin C 5g 1 x day

We need Vitamin C to create new collagen. Active metastatic cancer in the bones takes our collagen, and with it it takes away our bone strength and our daily energy. Vitamin C is so important. Liposomal Vitamin C allows me to have 5g each evening with my melatonin powder and magnesium without upsetting my digestive system.
(Small IV-C doses easily obtainable with Lip C) A median reduction of 50% in pain was observed among the patients in the vitamin C group. Median survival time was 10 mo in patients receiving ascorbic acid, whereas the chemotherapy and control groups had a median survival of 2 mo. https://pubmed.ncbi.nlm.nih.gov/26168394/




I’m not currently offering support calls.












Protection against regular cancer screening procedures.

Here’s a link to a great interview for anyone with cancer to hear. It was most valuable for me to listen to, as I am booked in for both an MRI (with ‘no’ contrast fluids) of my spine and a full body bone scan on the same day to monitor my situation.
The role of high dose vitamin C to support us in protecting our healthy cells while living with cancer scanning appointments and conventional treatment choices is discussed.