I believe I am still doing well. I am feeling great. Bone scan and markers happening next month so when I have results I will share. Meanwhile this worksheet project and a couple of these groups have been something I have contributed to over the past few years and I wanted to make sure these resources are here for anyone with breast cancer now reading this.
The Breast Cancer Pathways worksheet project began in early 2019 as a collaboration between myself and,Maria Wessling Bachteal.With help from members of our Facebook group, we have dedicated countless hours searching for and organizing breast-cancer-specific laboratory and clinical research that is accessible in the public domain.
It is basically a systematic framework for breast cancer survivors and their clinicians to help organize their current protocol of off-label drugs and supplements based on a summary of available evidence.
The worksheet is meant to be informational and is meant to enhance, not replace, standard-of-care (SOC) and or integrative oncology protocols.
Please support the development of the worksheet project by sharing your own research finds in the Breast Cancer Pathways study group with hashtags/post topics that match the worksheet segments/pages.
HER2+ Breast Cancer – Integrative Protocolsfacebook groupwith Maria is not a typical HER2+ support group, but a HER2+ INFORMATION SHARE group. “We have a base understanding of integrative cancer care from many helpful books and online resources—and understand the role we can play in steering our own HER2+ cancer navigation ship”. In order to join this private HER2+ group you will need to send Maria a friend request and a private message telling her that you or your loved one has a HER2+ breast cancer diagnosis.
The healing cancer study support group‘s A-Z directory is helpful in that it takes existing group members directly to a thread of information on the same topic within the Facebook group. Existing conversation threads are the best place to read and ask your questions regarding the worksheet.
Join and participate in these online communities to learn all you can. Please be sure to search the group for keywords that could answer your questions. Take your time and take notes before posting your questions. Many questions have already been asked and answered to some degree. Start with a search before a new post.
Healing and learning supported within a on-line breast cancer community via the Circle platform
MCS aim to deliver the very best on purity, strength and fair price. MCS often focus on single compounds and do the best to remove excipients, maximise active ingredients in a capsule, and increase bioavailability. MCS courier worldwide and donate 50% of their profits to projects designed to accelerate the transfer of value from traditional medicine and/or academic space to clinical space, and enable new treatments for cancer patients. The remaining 50% will help MCS Formulas to be healthy, grow, and be able to contribute more. Simply click this MCS foundation affiliate link when searching for your supplements. https://www.mcsformulas.com/ref/14/
Follow the steps to successfully download your free copy of the breast cancer pathways free worksheet HERE
Nov 2020 1st CTCResults: 10 ml of blood 3.3 CTC/ml incl 1 cluster. Specimen contained single CTC (n= 16), and one cluster of CTC-like cells with 17 nuclei (n=17), total CTC (n=33), suggesting some residual disease activity. The background shows mild to moderate numbers of immune cells and occasional fungal elements. The CTC count is consistent with a mild to moderate increased risk of tumour progression or relapse.
I am thinking this is not too bad. Still room for improvement (especially re. fungal elements) but really great news worth celebrating. I will continue to pause the Zoladex for now and keep up with immune system and anti-inflammatory focus while pulsing the pathways inhibitors.
March 2022 note: I did end up stopping the Zolodex all together – did not go back to it and have continued with Melatonin which is now 60mg a night and every now and then I will pause it for 5 days and then re-start. My tumor markers remain the lowest of all time and all labs are looking really good. White blood cells were terribly low for years but have come back up to the normal range in past few months. I am living a very active pain-free life, practicing Qi Gong and working as a mental health outreach support worker. Having bone scans once a year and next one due in early May 2022.
Many women who read this blog have a similar diagnosis to me and write to ask me about what I take each day in regards to my bones mets . Here’s my bone healing list of supplements and studies. None are strictly ‘bone only’ and all have multiple anti-cancer targets. In early 2023 for ease when updating I have moved my bone met healing research notes to the new parent site: My Healing Community.
You can now find my bone met healing research notes here.
Great news NO evidence of active disease on my latest PET. I’m into the 8th month now of my break from the Zoladex. My next test will be a circulating tumor cell (CTC) test. Still taking all my breast cancer pathway inhibitors each day. Spending more time away from the breast cancer research and never ending spreadsheets. I am enjoying spending time each day supporting others with their healing thoughts and emotions and looking after the now 10k member strong healing cancer study support group.
I’ve been taking many of the same things I was taking back in June. The dosages have got a bit smaller perhaps on some of the herbs and tincture and lately I have increased my Omega-3 and Olive Leaf Extract. Here’s a list of what I’ve taking the past few months (and the olive leaf extract, Vit B3 and a Methylated B mix is missing from the list-sorry): https://drive.google.com/file/d/1pz2JmB7eT3Tm5H5TZ-a_R2tkLSRI0OLJ/view?usp=sharing
I had a super long yarn with the very lovely Trish Waipouri about my breast cancer journey last week. Trish has been interviewing women with breast cancer as a part of breast cancer awareness month. It’s now up on YouTube. Sorry, it is such long conversation. If you are interested, perhaps bookmark it and listen to it over 3 nights of doing the dishes or something 🙂 I am looking forward to watching more of Trish’s interviews and Trish’s own story about her healing journey.
I played this back today and heard myself say that I was taking 2 x 500g liposomal curcumin capsules 3 times each day however that was not correct. I took 2 x 500mg 3 times a day yes, mg not grams!
When I think of alive cancer cells, I think of cells that are metabolically active. And then I think well that’s what a PET scan attempts to tell us. This is why I paid out of pocket last year to get my PET scan. I wanted to know if my metastatic breast cancer was metabolically active after 9 months of DIY concentrated metabolic pathway inhibition.
My very conventional oncologist doesn’t seem to give much weight to cancer being seen as active or inactive and refused to write me a referral for a PET scan. She said that PET’s are not accurate enough as far as seeing small stuff. You are stable, and that’s great she said. I went online and found an oncologist who was happy to refer me for a PET scan. ‘Stable” was not the term I had worked hard for. I’m looking for a NED and I would be happy to hear that I was NEAD given that bones do take time to return to normal healthy scar free images on the bone scans. Stable, I’ve been stable for ages.
I had a copy of the PET results sent to my conventional oncologist so she could celebrate with me (not). I guess if she was in my shoes and actually knew how much work and how much time and money I had invested in starving the stem cells she would have been more likely to get behind a PET and be celebrating with me when it came back with a NEAD report. No evidence of active disease. No, she wasn’t impressed one bit but the report did give me an opportunity to argue with her about the language we were going to use going forward. Since the 2 reports. (I had 2, one report done in QLD and in one NSW. My original PET ordered by my QLD surgeon win 2017 was done in QLD and the 2nd in 2019 was done in NSW). I won the argument. No more referring to my condition as stable, She agreed to join me and the report writers in calling it NEAD. She said it made no difference to her. I said it meant everything to me. I tried to explain that stable sounded like I had cancer that was not progressing. NEAD sounds like I have no living cancer cells.
I combined the PET report with her bone scan and CT report and yes there is scar tissue built up on some of my bones, but there are also areas which have cleared and are no longer noted. The cancer had not only caused these build ups but it had taken away bone..these bits I thought of as my Swiss cheese. These have healed. No more Swiss cheese and instead I have new healthy bone. Coming up to nearly 3 years since my stage 4 diagnosis I can happily say..I am way beyond stable; I am healing. I have healed wide spread bone mets ..and my body is amazing and I will keep doing everything I can to support it to stay this way.
I no longer inhibit all the pathways at once to starve cancer these days as I once did. I believe it is no longer there; nothing to be starved. Instead I live very healthy and I focus on caring for my immune system and overall energy and health, incl my hormones ( all new learning curve!!) and mental health. I recently stopped my monthly Zolodex implant that the onc put me on mid 2017. Will tell her I stopped it at next appt. And I no longer take Dipyridamole (DPM). I rarely take the Herpes drug medication I used alongside DPM to get things back on track . I am using herbs and supps instead and have no outbreaks. I am having a pause from Quercetin too just now too and think this is working for me.
I’m still very happy taking/eating daily or cycling: green tea, licorice root and fennel, chamomile, chrysanthemum, ashwaganda, burdock chlorella, chia, green apple, ginger powder, lime or lemon juice, Vit D3, K2, Liposomal Vit C, R-ALA, Curcumin Phytosome with Meriva, Zinc, Magensium, Selenium, Boron, Iodine, Beta Glucan, NAC, Niacin, Mixed B’s, (extra B12 B6 only 2 x week) , Broc Sprout Powder, Grape Seed Extract, High dose Melatonin, Cats Claw, Astragalus, EPA/DHA, Tocopherols, Olive Oil, Eating so well, mostly plant based with more pulses. Chicken in very small portions 1-2 x week and a little red meat every 3-ish weeks . Black seed oil ( but not too much) Hydrogen water, skullcap. Loads of greens and olives and sauerkraut and sprouts. Infrared Sauna 3 x week, Emotional releasing work, 1-2 dog walks a day, Medical Chi Gong movement practice with healing mediation 1 hr each morning.
for regulation of WNT signalling, which induces bone metastases in breast cancer, I take
Aspirin: as mentioned previously. Dipyridamole:as mentioned previously. Vitamin D3: 5000IU at breakfast taken with 90mcg Vit-K2 Tocotrienols: Delta fraction 250mg with breakfast as previously mentioned
for Interleukins which are linked to progression in breast cancer I am already taking
Aspirin: as mentioned previously
for PPAR I am taking
whichdoesn’t contribute to early stages of Breast Cancer but does contribute to fatty acid oxidation used by cancer in later stages to spread to other organs.
Citrus Bergamot: as mentioned previously Berberine: as mentioned previously Omega-3: In daily diet of chia seeds, walnuts, mackerel, and the cod liver oil mentioned below. Vit -A: 600mg quality refridgerated Cod Liver oil with lunch. Vit-D3: as mentioned previously. Omega -7: 450mg Sea Buckthorn Oil with lunch daily.
Pro-biotic: weekly Sauerkraut: tablespoon each day with meal Raw cacao powder: tablespoon in my breakfast each day.
Milk Thistle: as mentioned previously. Sunflower Lecithin Liposomal Vitamin C each day as mentioned previously. Food: Fresh Lemon Juice, Green Apple and Spirulina with Chia with Ginger Powder for my first breakfast.
Valaciclovir or Valtrex: Was on 500mg x 1 with lunch, then moved down to 200mg a day..Now on 200mg or 500mg a lot less often.
A whole day’s meds and supps: Current as of June 23rd 2019
1 x capsule Milk Thistle available online at i-herb.com
There appears to be many studies on Pubmed suggesting that silymarin from Milk Thistle may exert a strong anticarcinogenic effect against many types of cancer, including breast cancer. It also and anti-oxidant and protects the liver and kidneys. Anticarcinogenic effect of a flavonoid antioxidant, silymarin, in human breast cancer cells MDA-MB 468: induction of G1 arrest through an increase in Cip1/p21 concomitant with a decrease in kinase activity of cyclin-dependent kinases and associated cycli… | Clinical Cancer Research
The mechanisms of anti-cancer activity of tocopherols 1) inhibition of ER (2) increasing peroxisome proliferator activated receptor γ (PPARγ) expression and activity, (3) induction of Nrf2, (4) antioxidative and anti-inflammatory activities, and (5) induction of apoptosis. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257724/
6 x Curcumin 500mg (2 at beginning of each main meal)
being Curcumin Phytosome with Meriva 500mg I swallow with Tulsi tea for Ursolic Acid Brand: Jarrow Formulas available online at i-herb.com I swallow my curcumin capsules with Tulsi tea in which I’ve dissolved my Hu Zang for the ursolic acid / resv / curc combo effect. Metabolic Pathway inhibitor: Glutamine/Glutaminolysis
A combination of ursolic acid and resveratrol or ursolic acid and curcumin prevents glutamine uptake by the cancer cell.
Ursolic Acid (1- 2 cups at beginning & end of lunc and dinner)
being in Tulsi Tea (aka Holy Basil Tea) available online at i-herb.com I swallow my Curcumin capsules (see above) with 150ml of the strong Tulsi tea Brand: I buy organic loose tea leaves in bulk online and drink with each meal. I will mix my other herbs and ginger in it too.
Brand: I buy organic green tea teabags online at i-herb.com Jane’s book says: “EGCG reduces angiogenesis and inhibitors of glutamate dehydrogenase (GHD), a precursor of glutamine (an amino acid), the other key nutrient cancer uses with glucose to fuel its growth. (so…it’s in my map under Glutamine/Glutaminolysis)” Mclelland, Jane. How to Starve Cancer …without starving yourself: The Discovery of a Metabolic Cocktail That Could Transform the Lives of Millions . Conscious Dreams Publishing. Kindle Edition. More on this.. https://www.nature.com/articles/18793
5g x Polygonum Cuspidatum Powder Extract in tulsi tea with dinner.
Not a completely safe option for homrone driven cancers:
A better coice to look into for inhibiting PP pathway is D-Mannose
being whole of Japanese Knotweed AKA Chinese herb Hu Zang powder 500mg dissolved in water and drunk. Metabolic Pathway inhibitors: Pentose Phosphate (P P Pathway) and likely more too. *Warning: not a safe supplement for “everyone” with breast cancer.. until you read this and your doctor agrees that it is not going to cause you harm in regards to estrogen do NOT take it:
Walking a Tightrope: A Perspective of Resveratrol Effects on Brea…: Ingenta Connect
A minimum of 6g of Ascorbic Acid from 35ml Liposomal Vitamin C
(around 4pm and again after dinner or even more often during the day if there are sick people about..e.g like this time of year in Australia) Australian made pure liposomal Vitamin C without alcohol or soy. I not only take this but I have been making it to order for others living in Australia since 2017. www.highdosevitaminc.com.au
LipoNaturals make another very good Liposomal Vitain C that is free from nasties and it is available online at i-herb.com.
1/2 teaspoon x Ashwagandha (Indian Ginseng) mixed in evening tulsi tea.
being Ashwagandha powder from online herb supplier austral herbs, mixed into my herbal tea one time each day. Ashwgandha is aloso available online at i-herb.com.
120 -180mg of ( super high dose pure) Melatonin about an hour or so before bed.
I worked my way up to this high dose at 10mg at a time usng the now foods 10mg from iherb only after working my way up to 10mg with the smaller dose capsules. My 60mg pure Melatonin capsules are bought online from perfect vitamin however I wish to start buying the powder form pure bulk and making my own capsules to save money.
Watch this great presentation by Dr. Frank Shallenberger, the president of the American Ozone Therapy Association. Learn how pure Melatonin is being used in high doses with stage 4 cancer patients alongside inulin potentiated chemo therpay and ozone therapy here.
Zolodex Implant 1 x monthly I am also in a state of chemically induced menopause from a GnRH Analogue called Goserlin
brand name: Zolodex (3.6mg implant)
Prescribed by my oncologist and given to me by my GP’s nurse once a month. This drug inhibits my ovaries from creating hormones.
To save you time, I have placed many or all the items listed above that are available online at iherb.com in an iherb.com shopping basket. You can change the currency from my currency to yours at the top of the iherb page and you can then delete items you already own and have at home from this complete basket. This is the link to the view of the shopping basket : iherb basket
To learn more about my private online healing cancer study support group and resources website. Please visit my healing community’s home base and resources page: www.myhealingcommunity.com/resources
When you shop at MCS Foundation a small % of the order supports me pay for the hosting this WordPress website. Simply click on this MCS foundation affiliate link when shopping for your supplements. https://www.mcsformulas.com/ref/14/ And use the coupon code abbey5 at the checkout for 5% off your order.
Jan 2019 Celebrating: learning, co-operation, support & flow My (Australian) GP approved my use of Dipyridamole yesterday. The chemist will be able to fulfill prescription next week. I will start with 100mg each day for a week and build up to 200mg each day of a slow release tablet.
I have been researching the power of Dipyridamole to inhibit the spread of cancer since I first learnt about it in Jane McLelland’s, How to Starve Cancer book. Along with Glucosamine Sulphate, Mebendazole & Aspirin, this Dipyridamole will seal the deal when it comes to stopping the release of growth factors/enzymes (VEGF’s & MMP’s) that break down the extracellular matrix and could allow my cancer to spread and grow.
I will just need to keep an eye on my blood pressure levels and make sure it does not get too low. The out of pocket cost is very low, but I will report back when I pick up the script next week.
I can’t recommend Jane McLelland’s book highly enough. “How to starve cancer without starving yourself”. I’ve heard the paper version is out of stock currently but I highly recommend the Kindle version for easy note taking, high-lighting cross-referencing and further online researching. https://www.amazon.com.au/Starve-Cancer-without-starving-yourself-ebook/dp/B07B2XMLT9
I recently started utilizing the information in the book titled
“How to Starve Cancer without Starving Yourself” by Jane McLelland
and the “McLelland Metro Map” which is explained within the book.
My hope is that this year’s blog entries will provide information to the people that are supporting me, in understanding exactly what it is I’m doing in an attempt to heal myself.
I also hope that the order and accessibility of the information on this site supports anyone walking alongside me on their own healing journeys.
Nothing written here on this site should be perceived as medical advice.
To learn more about my private online healing cancer study support group and resources website. Please visit my healing community’s home base and resources page: www.myhealingcommunity.com/resources
Here’s a link to a great interview for anyone with cancer to hear. It was most valuable for me to listen to, as I am booked in for both an MRI (with ‘no’ contrast fluids) of my spine and a full body bone scan on the same day to monitor my situation.
The role of high dose vitamin C to support us in protecting our healthy cells while living with cancer scanning appointments and conventional treatment choices is discussed.
It’s now Nov 1st 2018 and my oncologist told me last week that my breast cancer tumor markers have dropped even further. They are now 16. I’m feeling magnificent and I will be getting an MRI of my spine next month to see how my Lumbar region is looking.
I’m currently not taking as many supplements as I was previously. This is what I’m taking currently:
5 grams Vitamin C as a 25ml shot of Life Energy C, each afternoon.
I’m adding plenty of organic turmeric & ginger powder to breakfast, all cups of tea & to my dinner. I drink organic Chrysanthemum tea with Marshmallow root with some organic ginger and turmeric powder in that too.
I am still loving my breakfast bowl of soaked chia, with 1 tspn chlorella powder, whole lemon juice to taste, soaked organic goji berries, 1 tspn organic ginger powder & 1 tspn organic rose-hip powder. Lunches are organic vegetable salads with sauerkraut, sometimes mackerel or chicken & avocado with lightly toasted pumpkin seeds and sunflower seeds.
Over the past couple of months I have enjoyed reading the book Radical Remission and the book, Molecules of Emotion. Both have provided me with the opportunity to reflect more deeply on how my emotional state and my sub-conscious state (the body’s intelligence systems of information and energy we call the mind) influence my healing of secondary breast cancer and my ability to maintain my good health going forward.
I now know how to muscle test (communicate with my sub-conscious mind about my body’s needs), and for the past 6 weeks I have used The Emotion Code to release trapped emotions from my body. I’ve found the releasing of trapped emotional baggage to be incredibly powerful. Physical conditions which I thought were never going to go away just left – And emotions which I thought were outside of my direct influence, left like a switch was flicked – gone!. I am so impressed with the power of this work that I am now completing The Emotion Code practitioner training so I can support others to release their emotional baggage that is causing stress in their bodies, their life and in their relationships with others. We all deserve to feel this good!
I’m aiming to have completed my training by the end of 2018. As a part of my training requirements, I’m looking for volunteers for free sessions with me (November/ December 2018). So, if you are in pain or have a nagging physical condition that you just can’t seem to get over, or blocks to the kind of relationships or life you desire, please get in touch. It is very likely that trapped emotions are getting in the way of your full recovery, your total well-being & your alignment with your highest good. Please contact me if you are interested in booking a free 45min Release Session with me in 2018. These can be done both via video call and in person.
I’ll check back in, in late December to share my MRI results with you.