Category: My Results ans Updates

My first CTC test results are in!

Nov 2020 1st CTC Results: 10 ml of blood 3.3 CTC/ml incl 1 cluster. Specimen contained single CTC (n= 16), and one cluster of CTC-like cells with 17 nuclei (n=17), total CTC (n=33), suggesting some residual disease activity. The background shows mild to moderate numbers of immune cells and occasional fungal elements. The CTC count is consistent with a mild to moderate increased risk of tumour progression or relapse.

I am thinking this is not too bad. Still room for improvement (especially re. fungal elements) but really great news worth celebrating. I will continue to pause the Zoladex for now and keep up with immune system and anti-inflammatory focus while pulsing the pathways inhibitors.

March 2022 note: I did end up stopping the Zolodex all together – did not go back to it and have continued with Melatonin which is now 60mg a night and every now and then I will pause it for 5 days and then re-start. My tumor markers remain the lowest of all time and all labs are looking really good. White blood cells were terribly low for years but have come back up to the normal range in past few months. I am living a very active pain-free life, practicing Qi Gong and working as a mental health outreach support worker. Having bone scans once a year and next one due in early May 2022.

Bone healing:

Many women who read this blog have a similar diagnosis to me and write to ask me about what I take each day in regards to my bones mets . Here’s my bone healing list of supplements and studies. None are strictly ‘bone only’ and all have multiple anti-cancer targets.

Melatonin

I worked my way from 3mg to 20mg then up to 180mg nightly. Melatonin influences bone metabolism by stimulating bone growth and inhibiting osteoclast activity. Oral administration of melatonin contained in drinking water increased bone strength in naturally aged mice. Nowadays I am taking 60mg a night. I also use a red light belt for 10 minutes before lights out and that helps me with sleep (at least I believe it does).

https://www.sciencedirect.com/science/article/abs/pii/S0065128120300957

Buying from: purebulk.com/melatonin

Black Seed Oil (Nigella Sativa) 500mg x 2,  2-3 x day

Thymoquinone Inhibits Bone Metastasis of Breast Cancer Cells Through Abrogation of the CXCR4 Signaling Axis

Bone metastasis was found to be significantly suppressed in the TQ treated group.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6288203/?fbclid=IwAR1jcXvuJQ_-oScrt5FeWsGcLZDX-BFAPO5KSRBx3dd8zvmkEWLRklvD4x4

Buying: Capsules not liquid at iherb.com I take 1 in the morning after breaky and one at night before my melatonin. https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC4632252/

Citrus Bergamot 500mg,  2- 3 x day

Bergamot Polyphenol Fraction Exerts Effects on Bone Biology by Activating ERK 1/2 and Wnt/β-Catenin Pathway and Regulating Bone Biomarkers in Bone Cell Cultures

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6163325/?fbclid=IwAR0VVPmLLuLMrYcxdXXn2jF4NV5Hn0Y-3U4ybFvqkyh3AoPlcj3KeWcwswM

Buying: O once used iherb.com Jarrow formulas and when finished moved to the new MCS formulas World’s best QUALITY from Italy here: MCS

Liposomal Baicalin (Chinese Skullcap)
1 x 200mg caps 1-2x day

Nowadays : Liposomal Baicalein (Chinese Skullcap) 1 x 200mg capsule ,  1-2x day w/out food if possible Before this MCS Liposomal Baicalein was available I took:  this one and a local herbalist tincture too: 
Buying:
I now use this one:  1 x 200mg capsule 1-2 x day
MCS formulas ships worldwide.
Use the coupon code abbey5 at the checkout for 5% off your MCS order.

Bone-protective and anti-tumor effect of baicalin in osteotropic breast cancer via induction of apoptosis

https://link.springer.com/article/10.1007/s10549-020-05904-y

Baicalin Ameliorates Bone Cancer Pain by Suppressing TRPV1 in Rat Dorsal Root Ganglia

https://journals.sagepub.com/doi/full/10.1177/1934578X19899562

Grape seed extract 95% proanthocyanidins
450mg x2, 1x each day

targeting abnormal bone metabolism to alleviate bone metastasis of breast cancer.

https://pubmed.ncbi.nlm.nih.gov/31625993/

Buying from: Purebulk.com
I’ve stopped taking but took for a couple of years 2019-2021

Andrographis 200mg 1 x day

A potent inhibitor of breast cancer-induced bone metastasis.nhibiting RANKL-induced NF-κB and ERK signaling
https://link.springer.com/article/10.1007%2Fs10549-014-2844-7

Available from: iherb I actually make my own capsules with local herb suppliers’s powder and take 1 x 500mg each morning with breakfast.


Algae Cal plus

I used Algae Cal plus the first year too. I think it was super helpful to use such a high quality bone supplement. AlgaeCal products used in 2017-18 for about 12 months and I find this is similar bone restore mix from iherb
The Algae cal product I used was this one: AlgaeCal plus.


Liposomal Vitamin C 5g 1 x day

We need Vitamin C to create new collagen. Active metastatic cancer in the bones takes our collagen, and with it it takes away our bone strength and our daily energy. Vitamin C is so important. Liposomal Vitamin C allows me to have 5g each evening with my melatonin powder and magnesium without upsetting my digestive system.
(Small IV-C doses easily obtainable with Lip C) A median reduction of 50% in pain was observed among the patients in the vitamin C group. Median survival time was 10 mo in patients receiving ascorbic acid, whereas the chemotherapy and control groups had a median survival of 2 mo. https://pubmed.ncbi.nlm.nih.gov/26168394/




I’m not currently offering support calls.












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Update April 2020

When I think of alive cancer cells, I think of cells that are metabolically active.
And then I think well that’s what a PET scan attempts to tell us. This is why I paid out of pocket last year to get my PET scan. I wanted to know if my metastatic breast cancer was metabolically active after 9 months of DIY concentrated metabolic pathway inhibition.


My very conventional oncologist doesn’t seem to give much weight to cancer being seen as active or inactive and refused to write me a referral for a PET scan. She said that PET’s are not accurate enough as far as seeing small stuff. You are stable, and that’s great she said. I went online and found an oncologist who was happy to refer me for a PET scan. ‘Stable” was not the term I had worked hard for. I’m looking for a NED and I would be happy to hear that I was NEAD given that bones do take time to return to normal healthy scar free images on the bone scans. Stable, I’ve been stable for ages.

I had a copy of the PET results sent to my conventional oncologist so she could celebrate with me (not). I guess if she was in my shoes and actually knew how much work and how much time and money I had invested in starving the stem cells she would have been more likely to get behind a PET and be celebrating with me when it came back with a NEAD report. No evidence of active disease. No, she wasn’t impressed one bit but the report did give me an opportunity to argue with her about the language we were going to use going forward. Since the 2 reports. (I had 2, one report done in QLD and in one NSW. My original PET ordered by my QLD surgeon win 2017 was done in QLD and the 2nd in 2019 was done in NSW). I won the argument. No more referring to my condition as stable, She agreed to join me and the report writers in calling it NEAD. She said it made no difference to her. I said it meant everything to me. I tried to explain that stable sounded like I had cancer that was not progressing. NEAD sounds like I have no living cancer cells.


I combined the PET report with her bone scan and CT report and yes there is scar tissue built up on some of my bones, but there are also areas which have cleared and are no longer noted. The cancer had not only caused these build ups but it had taken away bone..these bits I thought of as my Swiss cheese. These have healed. No more Swiss cheese and instead I have new healthy bone.
Coming up to nearly 3 years since my stage 4 diagnosis I can happily say..I am way beyond stable;
I am healing. I have healed wide spread bone mets ..and my body is amazing and I will keep doing everything I can to support it to stay this way.

I no longer inhibit all the pathways at once to starve cancer these days as I once did. I believe it is no longer there; nothing to be starved. Instead I live very healthy and I focus on caring for my immune system and overall energy and health, incl my hormones ( all new learning curve!!) and mental health. I recently stopped my monthly Zolodex implant that the onc put me on mid 2017. Will tell her I stopped it at next appt. And I no longer take Dipyridamole (DPM). I rarely take the Herpes drug medication I used alongside DPM to get things back on track . I am using herbs and supps instead and have no outbreaks. I am having a pause from Quercetin too just now too and think this is working for me.


I’m still very happy taking/eating daily or cycling: green tea, licorice root and fennel, chamomile, chrysanthemum, ashwaganda, burdock chlorella, chia, green apple, ginger powder, lime or lemon juice, Vit D3, K2, Liposomal Vit C, R-ALA, Curcumin Phytosome with Meriva, Zinc, Magensium, Selenium, Boron, Iodine, Beta Glucan, NAC, Niacin, Mixed B’s, (extra B12 B6 only 2 x week) , Broc Sprout Powder, Grape Seed Extract, High dose Melatonin, Cats Claw, Astragalus, EPA/DHA, Tocopherols, Olive Oil, Eating so well, mostly plant based with more pulses. Chicken in very small portions 1-2 x week and a little red meat every 3-ish weeks . Black seed oil ( but not too much) Hydrogen water, skullcap. Loads of greens and olives and sauerkraut and sprouts. Infrared Sauna 3 x week, Emotional releasing work, 1-2 dog walks a day, Medical Chi Gong movement practice with healing mediation 1 hr each morning.

I continue to find and devour inspiring resources that keep me anchored in the power of the focused mind over the state of the body. Right now I am feeling super happy to have found the book Mind to Matter by Dawson Church. Will post some more about this resource in the group’s thread dedicated to psychological resources for healing cancer.https://www.facebook.com/photo.php?fbid=10156770660276662&set=g.240927233489567&type=1&theater&ifg=1

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Happy Monday 13th May

Incredibly Good News:

My secondary Breast Cancer (mets to bones) diagnosis from May 2017 looks like it’s continuing to reverse itself. I appear to be on the right track to meet my outrageous goal of getting a no evidence of disease (NED) report this year. I had a bone scan last week; my first one in 5 months and the results are a great read. I especially love re-reading this line from the report:
“The previously identified lesions elsewhere on the bone scan performed 6/12/18 are no longer visualized.”

So this means:
In about 4 of the 7 places, where there was some broad areas of what conventional oncologist’s call stage 4 ‘incurable’ disease, the cancer is NO LONGER DETECTED.
OMG – How wonderful is that!
I’m still swimming in the good feeling feelings of…

1) relief; Even though I believe in everything I am doing, I was a little concerned given that I’m taking very leading- edge and not always conventional approach to my healing.

2) acknowledgment; this report somehow acknowledges all my valuable time and energy devoted to this task of researching how to starve my cancer.

3) inspiration; I am feeling energized and focused on the NED goal ahead of me. I have just three areas of disease still visualized on the latest bone scan; I started with 7 bones lesions + 3 breast area/lymph node tumors 2 years ago.


If you or someone you know could use some support in learning how they could turn their cancer diagnosis around like I have these are my top 3 resource suggestions:

My top 3 healing cancer resource suggestions:

My own now 2200+ member strong How to Starve Cancer… Study Support Group:
http://www.myhealingcommunity.com

The electronic version of the book “How to Starve Cancer…” by Jane McLelland:
https://www.amazon.com.au/Starve-Cancer-without-starving-yourself-ebook/dp/B07B2XMLT9

To learn more about the private online healing cancer study support group that I created to help me understand all of this very sensible non-sense please visit: www.myhealingcommunity.com


To book an hour long support call with me visit:
https://app.acuityscheduling.com






2019 – off to a flying start

Jan 2019
Celebrating: learning, co-operation, support & flow
My (Australian) GP approved my use of Dipyridamole yesterday. The chemist will be able to fulfill prescription next week. I will start with 100mg each day for a week and build up to 200mg each day of a slow release tablet.

I have been researching the power of Dipyridamole to inhibit the spread of cancer since I first learnt about it in Jane McLelland’s, How to Starve Cancer book.
Along with Glucosamine Sulphate, Mebendazole & Aspirin, this Dipyridamole will seal the deal when it comes to stopping the release of growth factors/enzymes (VEGF’s & MMP’s) that break down the extracellular matrix and could allow my cancer to spread and grow.

I will just need to keep an eye on my blood pressure levels and make sure it does not get too low. The out of pocket cost is very low, but I will report back when I pick up the script next week.

I can’t recommend Jane McLelland’s book highly enough. “How to starve cancer without starving yourself”. I’ve heard the paper version is out of stock currently but I highly recommend the Kindle version for easy note taking, high-lighting cross-referencing and further online researching. https://www.amazon.com.au/Starve-Cancer-without-starving-yourself-ebook/dp/B07B2XMLT9

 

I  recently started utilizing the information in the book titled

“How to Starve Cancer without Starving Yourself” by Jane McLelland

and the “McLelland Metro Map” which is explained within the book.


My hope is that this year’s blog entries
will provide information
to the people that are supporting me,
in understanding exactly what it is
I’m doing in an attempt to
heal myself.


I also hope
that the order and accessibility
of the information on this site supports
anyone walking alongside me
on their own healing journeys.

 

Nothing written here on this site should be perceived as medical advice.

To learn more about my private online healing cancer study support group and resources website. Please visit my healing community’s home base and resources page: www.myhealingcommunity.com/resources

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Clear Intentions for 2019

 

Christmas 2018 Update:
On one hand, I’m celebrating many great test results received throughout 2018. An ultrasound in September showed three tumors across my chest wall have vanished completely and regular blood tests indicate my tumor markers are well and truly in the ‘normal persons’ range. My MRI and full body bone scans from December indicate my cancer is stable and possibly even retreating in one of my vertebrae.

I’m also feeling more determined then ever, that I can clear this cancer out of my body. I’m happy with my super healthy, balanced low-carb diet and energetically balanced life, my strong immune system; all have all been a great achievements, but I’m feeling like I’m now in the right place on all levels to totally slay this cancer dragon.

I have been fortunate that in the past week I found this new book by U.K cancer out- smarter, Jane McLelland. It’s really a must read for anyone looking to out-smart the dragon that is cancer. Jane has mapped the metabolic pathways of the cancer cells and ways to block these pathways using affordable re-purposed medications, (both over the counter and prescription), alongside close attention to diet and  timing specific exercise.

I’ll keep you updated to how I chose to engage with the new information I’m integrating from the book and how my body responds over the coming months.

I’ve stuck this image of the Goddess Kali to my fridge to inspire me throughout the new year.
Goddess-Kali-gods-of-hinduism-33227362-601-750

 

16 Months after secondary breast cancer diagnosis

It’s now Nov 1st 2018 and my oncologist told me last week that my breast cancer tumor markers have dropped even further. They are now 16. I’m feeling magnificent and I will be getting an MRI of my spine next month to see how my Lumbar region is looking.
I’m currently not taking as many supplements as I was previously. This is what I’m taking currently:

I’m adding plenty of organic turmeric & ginger powder to breakfast, all cups of tea &  to my dinner. I drink organic Chrysanthemum tea with Marshmallow root with some organic ginger and turmeric powder in that too.

I am still loving my breakfast bowl of soaked chia, with 1 tspn chlorella powder, whole lemon juice to taste, soaked organic goji berries, 1 tspn organic ginger powder  & 1 tspn organic rose-hip powder. Lunches are organic vegetable salads with sauerkraut, sometimes mackerel or chicken & avocado with lightly toasted pumpkin seeds and sunflower seeds.

Over the past couple of months I have enjoyed reading the book Radical Remission and the book, Molecules of Emotion. Both have provided me with the opportunity to reflect more deeply on how my emotional state and my sub-conscious state (the body’s intelligence systems of information and energy we call the mind) influence my healing of secondary breast cancer and my ability to maintain my good health going forward.

I now know how to muscle test (communicate with my sub-conscious mind about my body’s needs), and for the past 6 weeks I have used  The Emotion Code to release trapped emotions from my body. I’ve found the releasing of trapped emotional baggage to be incredibly powerful. Physical conditions which I thought were never going to go away just left – And emotions which I thought were outside of my direct influence, left like a switch was flicked – gone!. I am so impressed with the power of this work that I am now completing The Emotion Code practitioner training so I can support others to release their emotional baggage that is causing stress in their bodies, their life  and in their relationships with others. We all deserve to feel this good!

I’m aiming to have completed my training by the end of 2018. As a part of my training requirements, I’m looking for volunteers for free sessions with me (November/ December 2018). So, if you are in pain or have a nagging physical condition that you just can’t seem to get over, or blocks to the kind of relationships or life you desire, please get in touch. It is very likely that trapped emotions are getting in the way of your full recovery, your total well-being & your alignment with your highest good.  Please contact me if you are interested in booking a free 45min Release Session with me in 2018. These can be done both via video call and in person.

I’ll check back in, in late December to share my  MRI results with you.
x Abbey