I believe I am still doing well. I am feeling great. Bone scan and markers happening next month so when I have results I will share. Meanwhile this worksheet project and a couple of these groups have been something I have contributed to over the past few years and I wanted to make sure these resources are here for anyone with breast cancer now reading this.
The Breast Cancer Pathways worksheet project began in early 2019 as a collaboration between myself and,Maria Wessling Bachteal.With help from members of our Facebook group, we have dedicated countless hours searching for and organizing breast-cancer-specific laboratory and clinical research that is accessible in the public domain.
It is basically a systematic framework for breast cancer survivors and their clinicians to help organize their current protocol of off-label drugs and supplements based on a summary of available evidence.
The worksheet is meant to be informational and is meant to enhance, not replace, standard-of-care (SOC) and or integrative oncology protocols.
1 minute video preview of the Breast Cancer Pathways Worksheet page titled: Manipulate Signalling.
This 1 minute (silent) video demonstrates how to navigate the worksheet on a desktop using the app’s navigation tools. Navigating on a Mobile Device is different: You will notice that the worksheet navigation tabs at the very bottom of your screen will hide once you scroll down the page. Scroll up the page and the navigation menu tabs will re-appear. When all navigation tabs and menus vanish click on the little ‘tick’ symbol that appears at the very top left corner of the screen to move out of edit mode and back into into navigation mode.
Please support the development of the worksheet project by sharing your own research finds in the Breast Cancer Pathways study group with hashtags/post topics that match the worksheet segments/pages.
HER2+ Breast Cancer – Integrative Protocolsfacebook groupwith Maria is not a typical HER2+ support group, but a HER2+ INFORMATION SHARE group. “We have a base understanding of integrative cancer care from many helpful books and online resources—and understand the role we can play in steering our own HER2+ cancer navigation ship”. In order to join this private HER2+ group you will need to send Maria a friend request and a private message telling her that you or your loved one has a HER2+ breast cancer diagnosis.
The healing cancer study support group‘s A-Z directory is helpful in that it takes existing group members directly to a thread of information on the same topic within the Facebook group. Existing conversation threads are the best place to read and ask your questions regarding the worksheet.
Join and participate in these online communities to learn all you can. Please be sure to search the group for keywords that could answer your questions. Take your time and take notes before posting your questions. Many questions have already been asked and answered to some degree. Start with a search before a new post.
Healing and learning supported within a on-line breast cancer community via the Circle platform
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Follow the steps to successfully download your free copy of the breast cancer pathways free worksheet HERE
Nov 2020 1st CTCResults: 10 ml of blood 3.3 CTC/ml incl 1 cluster. Specimen contained single CTC (n= 16), and one cluster of CTC-like cells with 17 nuclei (n=17), total CTC (n=33), suggesting some residual disease activity. The background shows mild to moderate numbers of immune cells and occasional fungal elements. The CTC count is consistent with a mild to moderate increased risk of tumour progression or relapse.
I am thinking this is not too bad. Still room for improvement (especially re. fungal elements) but really great news worth celebrating. I will continue to pause the Zoladex for now and keep up with immune system and anti-inflammatory focus while pulsing the pathways inhibitors.
March 2022 note: I did end up stopping the Zolodex all together – did not go back to it and have continued with Melatonin which is now 60mg a night and every now and then I will pause it for 5 days and then re-start. My tumor markers remain the lowest of all time and all labs are looking really good. White blood cells were terribly low for years but have come back up to the normal range in past few months. I am living a very active pain-free life, practicing Qi Gong and working as a mental health outreach support worker. Having bone scans once a year and next one due in early May 2022.
Bone healing:
Many women who read this blog have a similar diagnosis to me and write to ask me about what I take each day in regards to my bones mets . Here’s my bone healing list of supplements and studies. None are strictly ‘bone only’ and all have multiple anti-cancer targets. In early 2023 for ease when updating I have moved my bone met healing research notes to the new parent site: My Healing Community.
You can now find my bone met healing research notes here.
Great news NO evidence of active disease on my latest PET. I’m into the 8th month now of my break from the Zoladex. My next test will be a circulating tumor cell (CTC) test. Still taking all my breast cancer pathway inhibitors each day. Spending more time away from the breast cancer research and never ending spreadsheets. I am enjoying spending time each day supporting others with their healing thoughts and emotions and looking after the now 10k member strong healing cancer study support group.
I’ve been taking many of the same things I was taking back in June. The dosages have got a bit smaller perhaps on some of the herbs and tincture and lately I have increased my Omega-3 and Olive Leaf Extract. Here’s a list of what I’ve taking the past few months (and the olive leaf extract, Vit B3 and a Methylated B mix is missing from the list-sorry): https://drive.google.com/file/d/1pz2JmB7eT3Tm5H5TZ-a_R2tkLSRI0OLJ/view?usp=sharing
I had a super long yarn with the very lovely Trish Waipouri about my breast cancer journey last week. Trish has been interviewing women with breast cancer as a part of breast cancer awareness month. It’s now up on YouTube. Sorry, it is such long conversation. If you are interested, perhaps bookmark it and listen to it over 3 nights of doing the dishes or something 🙂 I am looking forward to watching more of Trish’s interviews and Trish’s own story about her healing journey.
I played this back today and heard myself say that I was taking 2 x 500g liposomal curcumin capsules 3 times each day however that was not correct. I took 2 x 500mg 3 times a day yes, mg not grams!
C3 Liposomal Curcumin I have learn more about Curcumin and this is the very best we can get.
Goserlin: Zolodex implant each month from oncologist inhibits IGF-1
Berberine: 500mg, 2 x daily, total daily= 1000mg
Loratadine: 10mg daily
Hydroxy Chloroquine: taking approx. 1 week of every 6
Dipyridamole: 200mg slow release Persantin 3 x daily (7am, 2pm, 9pm) daily total = 600mg
EGCG in Green Tea: 2-3 cups each day decaf and 1 x 725mg decaf capsule at dinner.
Curcumin phytosome with meriva: 500mg x 2, 3 x daily = 1500mg with meals
Ursolic Acid inTulsi Tea with meal to wash down curcumin capsules.
Japanese Knotweed aka Hu Zang root powder from which Resveratrol comes Total taken with evening meal, 1 tsp stirred into in the tulsi tea.
My Glucose Pathway Inhibitors
Quercetin: 600mg 3 x daily total = 1800mg
Curcumin Phytosome with Meriva: as mentioned previously.
Liposomal Vit C: currently enjoying 5g (about 30ml) x 2-3 x daily and I have 4 drops of Zinc chelate I water as a chaser.
Melatonin: currently taking 180mg at 7pm ( 3 x 60mg pure melatonin capsules from online supplier Perfect Vitamin- I worked my way up gradually using products on herb)
Metformin also exerts anticancer effects through the inhibition of the Sonic hedgehog signaling pathway in breast cancer and I am not currently taking Metformin https://www.ncbi.nlm.nih.gov/pubmed/25999130
for regulation of WNT signalling, which induces bone metastases in breast cancer, I take
Aspirin: as mentioned previously. Dipyridamole:as mentioned previously. Vitamin D3: 5000IU at breakfast taken with 90mcg Vit-K2 Tocotrienols: Delta fraction 250mg with breakfast as previously mentioned
Hydroxychloroquineefficiently suppresses inflammatory responses of human class-switched memory B cells via Toll-like receptor 9 inhibition. – PubMed – NCBI https://www.ncbi.nlm.nih.gov/pubmed/29981383
Hormone therapies incl. Goserlin which is my monthly Zolodex implant from my oncologist.
Aspirin:as mentioned previously.
Melatonin: as mentioned previously.
Tocopherols: 400IU at lunch each day.
Melatonin is an appropriate candidate for breast cancer treatment: Based on known molecular mechanisms – Amin – 2019 – Journal of Cellular Biochemistry – Wiley Online Library https://onlinelibrary.wiley.com/doi/abs/10.1002/jcb.28832
Postmenopausal women who regularly use aspirin and other analgesics (known as painkillers) have lower estrogen levels, which could contribute to a decreased risk of breast or ovarian cancer.https://www.sciencedaily.com/releases/2010/03/100323133043.htm
for Epidermal Growth Factor (EGF) I am already taking the following
Milk Thistle: as mentioned previously. Berberine: as mentioned previously EGCG: green tea as mentioned previously Curcumin:as mentioned previously
for Interleukins which are linked to progression in breast cancer I am already taking
Aspirin: as mentioned previously
for PPAR I am taking
whichdoesn’t contribute to early stages of Breast Cancer but does contribute to fatty acid oxidation used by cancer in later stages to spread to other organs.
Citrus Bergamot: as mentioned previously Berberine: as mentioned previously Omega-3: In daily diet of chia seeds, walnuts, mackerel, and the cod liver oil mentioned below. Vit -A: 600mg quality refridgerated Cod Liver oil with lunch. Vit-D3: as mentioned previously. Omega -7: 450mg Sea Buckthorn Oil with lunch daily.
Pro-biotic: weekly Sauerkraut: tablespoon each day with meal Raw cacao powder: tablespoon in my breakfast each day.
Liver
Milk Thistle: as mentioned previously. Sunflower Lecithin Liposomal Vitamin C each day as mentioned previously. Food: Fresh Lemon Juice, Green Apple and Spirulina with Chia with Ginger Powder for my first breakfast.
Ant-viral medication
Valaciclovir or Valtrex: Was on 500mg x 1 with lunch, then moved down to 200mg a day..Now on 200mg or 500mg a lot less often.
To learn more about my private online healing cancer study support group and resources website. Please visit my healing community’s home base and resources page: www.myhealingcommunity.com
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