I believe I am still doing well. I am feeling great. Bone scan and markers happening next month so when I have results I will share. Meanwhile this worksheet project and a couple of these groups have been something I have contributed to over the past few years and I wanted to make sure these resources are here for anyone with breast cancer now reading this.
The Breast Cancer Pathways worksheet project began in early 2019 as a collaboration between myself and,Maria Wessling Bachteal.With help from members of our Facebook group, we have dedicated countless hours searching for and organizing breast-cancer-specific laboratory and clinical research that is accessible in the public domain.
It is basically a systematic framework for breast cancer survivors and their clinicians to help organize their current protocol of off-label drugs and supplements based on a summary of available evidence.
The worksheet is meant to be informational and is meant to enhance, not replace, standard-of-care (SOC) and or integrative oncology protocols.
1 minute video preview of the Breast Cancer Pathways Worksheet page titled: Manipulate Signalling.
This 1 minute (silent) video demonstrates how to navigate the worksheet on a desktop using the app’s navigation tools. Navigating on a Mobile Device is different: You will notice that the worksheet navigation tabs at the very bottom of your screen will hide once you scroll down the page. Scroll up the page and the navigation menu tabs will re-appear. When all navigation tabs and menus vanish click on the little ‘tick’ symbol that appears at the very top left corner of the screen to move out of edit mode and back into into navigation mode.
Please support the development of the worksheet project by sharing your own research finds in the Breast Cancer Pathways study group with hashtags/post topics that match the worksheet segments/pages.
HER2+ Breast Cancer – Integrative Protocolsfacebook groupwith Maria is not a typical HER2+ support group, but a HER2+ INFORMATION SHARE group. “We have a base understanding of integrative cancer care from many helpful books and online resources—and understand the role we can play in steering our own HER2+ cancer navigation ship”. In order to join this private HER2+ group you will need to send Maria a friend request and a private message telling her that you or your loved one has a HER2+ breast cancer diagnosis.
The healing cancer study support group‘s A-Z directory is helpful in that it takes existing group members directly to a thread of information on the same topic within the Facebook group. Existing conversation threads are the best place to read and ask your questions regarding the worksheet.
Join and participate in these online communities to learn all you can. Please be sure to search the group for keywords that could answer your questions. Take your time and take notes before posting your questions. Many questions have already been asked and answered to some degree. Start with a search before a new post.
Healing and learning supported within a on-line breast cancer community via the Circle platform
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MCS aim to deliver the very best on purity, strength and fair price. MCS often focus on single compounds and do the best to remove excipients, maximise active ingredients in a capsule, and increase bioavailability. MCS courier worldwide and donate 50% of their profits to projects designed to accelerate the transfer of value from traditional medicine and/or academic space to clinical space, and enable new treatments for cancer patients. The remaining 50% will help MCS Formulas to be healthy, grow, and be able to contribute more. Simply click this MCS foundation affiliate link when searching for your supplements. https://www.mcsformulas.com/ref/14/
Follow the steps to successfully download your free copy of the breast cancer pathways free worksheet HERE
My latest pathology report says my tumor markers dropped a further 3 points since my last blood draw in May. Now at an all time low of 11. I had the first AstraZeneca in late July and experienced a lot of anxiety as my lymph swelled and my ribs ached and my energy wained for 14 days. I chronically low white blood cells counts so I took loads of supports for the 3 weeks post Vaccine. The long list is here. I am now giving my kidney’s a rest and feeling super relieved!
MCS formulas are designed to be more bioavailable and often have the highest strength and purity of active compounds compared to other formulas. Made with cancer patients needs in mind.
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This week my chat with Dr. Michael Karlfeldt of The Karlfeldt Center was released. Dr. Karlfeldt has been chatting with people he meets in the cancer healing space and recording these chats for his podcast. His site is:
When I saw the title and had a listen I immediately felt uncomfortable and thought I would like to share some Clarifications:
Chemo and Radiation I was fortunate that my highly ER+ breast cancer diagnosis and the time frame in which I found it and the other options that were offered to me meant that I didn’t have to choose chemotherapy. I totally understand and respect that each patient’s options and choices are unique to them and find the title of this podcast a bit disconcerting. Perhaps a better title would be “Are my choices made in fear?” I mentioned in the podcast that I was offered chemotherapy by my oncologist in 2017 and my response to the offer for chemo was “thanks but not now as I’m pretty certain I’m NOT healthy enough this minute to warrant adding more damage to my body”. I wasn’t saying a final “no thanks” but a “not now”. As long as I’m blessed with knowing about other healing cancer options suitable for me that cause no harm, especially to my liver and my gut and immune system I will explore these first. At the very least I ‘now’ know (thanks to the integrative and naturopathic oncologists books I have read and articles I have since read) how to support my body through chemo in a way I had no knowledge of in 2014 or 2017. I can still empathise with that terrified me that was determined to stop the cancer in my spine that was reported to have “destroyed the left pedicle of L5”. My catastrophizing mind was telling me that targeted radiation was a good strategy to avoid a life of suffering and immobility. I guess the small part of me that regrets the radiation is regretful because I acted from a place of fear to ‘burn and destroy the cells in my own body’. Again I was fortunate to be given IV Vitamin C therapy for the 5 weeks following targeted radiation and then keep taking high dose Vitamin C daily in the form of high doses of my homemade Liposomal Vitamin C. I had no idea how incredibly sensible these two Vitamin C choices were at time and how blessed I was to have been gifted the IV therapy and inspiration and understanding of how to make my own Liposomal C. I am so grateful and seriously believe I’ve been Divinely guided and protected from day one.
Conclusions: Elevated NLR, a measure of systemic inflammation, has been associated with higher mortality cancer patients, including breast cancer patients. In this observational study, NLR was significantly decreased during radiation therapy in patients administered high-dose vitamin C.
Dr. Karlfeldt asked the question about my opinion on the best diet for breast cancer patients and I answered the Nasha Winter’s practitioner guided clean keto diet. https://www.drnasha.com/physicians/
I don’t think there is a one size fits all when it comes to a diet for cancer but a keto diet that is clean and high in Omega 3 and super careful around keeping the Omega 6 fats low, is the diet I know I would do best on. I ate a lot of meat on my keto for cancer diet in 2017-2018 and as much as I am happy I did that keto for cancer diet then, I would do it with a lot less bacon the second time round. Today I enjoy a balanced whole food diet and feel great. My energy is good and my head is clear. My gut is happy. I think going onto a clean keto I would really miss the lentil dishes and the slow cooked porridge I’ve been enjoying lately. The porridge is whole berries of spelt, barley, oat and rye cooked in a pressure cooker with green apples and then organic mixed berries and finely ground nuts are added and it’s served with cinnamon and nutmeg and banana. OMG – I would miss that start to my day. And this complex carb high fibre breakfast now really agrees with me. I do have a coffee and take fish oil and some other supps at breaky too. I have more energy all day than I did pre-cancer diagnosis. Somewhere along the way on this healing journey I have healed my mitochondria and believe I am at 50 in some important ways an upgraded rather than a damaged version of the old me.
Mind over body
I mentioned a few strategies I engaged with to work with my mind and emotions. I will share links below, and add a few I did not mention that I think were valuable to me. Dr.Joe Dispenza:
Books I loved which have mediations to go with them: ‘You are the Placebo’ and ‘Breaking the Habit of Being Yourself’. I listened to Youtube presentations by Dr.Joe and took notes, journelled and listened to the audio versions of the books repeatedly. I transcribed his mediations and read them to myself and then listened to the meditations in my voice until I was fully aligned with this powerful theory of change.
Below is a short snippet of a video I recorded of myself in 2018 doing the intuitive healing movement meditation in which I am blessing my energy centres. I see it like a very physically engaged prayerful gratitude practice. My background sound is the morning birdsong at home in Valla, NSW Australia.
https://drjoedispenza.com/collections/books Meditations by Dr. Joe that supported me greatly were ‘Blessings of the Energy Centres’ (BEC) 1 & 2 ( now I see there is BEC 3 which I am keen to hear). There were a few other Dr. Joe mediations that inspired me but really the BEC 1& 2 were my standouts. I could not sit still and meditate after my diagnosis. I could lay down but that didn’t seem like the way to bless my energy centres at that time so I got up off the floor and moved my body in a movement meditation as I listened to the BEC 2 played loud. I guess I can call what I was doing a movement meditation because this term was later introduced to me by my GP’s partner when they invited me to learn cosmoForm with them.
The Form:“cosmoFORM realigns the nervous system with higher frequencies of our being. As we move only aligned with our heart, this realigns the whole body, everything that we are in your nervous system. The movement re-patterns our nervous system to bring in more of our real light of Pure Self. When we move in cosmoFORM, particularly in the black, deeply given to the profound relaxation and centred within the radiance of our heart, we begin to realise we are moving in the formless but the formless is instantly formed as our body-mind right now.” B Prior Foundation https://www.bprior.org/the-form?locale=en Chakra Dance In the midst of myown intuitive movement meditation practices which were a mash up of Dr. Joe, Qi Gong I enrolled in a Chakra Dance online facilitator training. It was fantastic. It provided more support and a deeper understanding on how I could work with each of my energy centres in service of my healing. I witnessed some wonderful changes in my life that I attribute to the deeper understanding of myself and what change I wanted to see in my world. https://www.chakradance.com/about
Qi Gong ( same as Chi Gong ) Besides a mindfulness meditation practice my other foundational wellbeing practice I have enjoyed since 2012 is Qi Gong. I am blessed to have a dear friend who is also my treasured medical Qi Gong teacher. I have just signed up to do a 9 month intensive training with her that will then allow me to share with other cancer patients some of the more simple yet deeply nourishing and transformational healing practices that she has taught me over the years. These ancient healing practices work on all 5 levels of healing; all the physical systems , the emotions, mental focus, the connection to spirit or healing energy and for me it’s a way to align with the Divine Intelligence behind all of life. Knowledge of how to, and when to, apply these practices in relation to the challenges faced on the cancer journey is something I feel is important to put my attention towards sharing. Meanwhile this is the original Youtube video I shared on Qi Gong : https://www.youtube.com/watch?v=ZJRtZAwVwgo
The Emotion Code At the end of our chat I talk about the value I have seen in releasing trapped emotions. I used the Emotion Code book and audio book to guide me in learning how to do this. On reflection I believe that my success with self-administrating this healing technique was a lot about being in a state of trust and alignment with higher frequency healing feelings and this was possible thanks to the above mentioned mind-body practices. I know that there are some wonderful energy healing practitioners that work with the Emotion Code and they work face to face and can do distant healing via the phone and video calls. I was trained in this and was sharing this for about a year with other patients but have withdrawn this offering for the time being while I heal some complex grief of my own. The Emotion Code Website: https://discoverhealing.com/the-emotion-code/
EMDR was another mind-body healing technique discussed briefly in our chat. I have not use dit but my GP uses it with his patients and he has told me about it. I think the results are similar to the results one gets using the emotion code. Here’s some more info on EMDR: https://www.emdr.com/what-is-emdr/
During the chat with Dr. K we briefly discuss these resources too..
I’m sure there is more to share, there always is.. Blessings x A
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June 3rd 2021 I just got the good news that my tumor markers are at their all time lowest mark of 14 and there is nothing active on my PET or CT. The bone scan shows no definite changes. Onc is still calling me stable. I am not on any oncology drugs and stopped Zoladex 16 months ago now. I am still taking Melatonin each night. I am healthy and very happy to be celebrating my 50th year in this precious body this month. I’m busy getting things in place to celebrate my 50th birthday with a breathwork and sound bath gathering, finger food feast and sock disco. Yes, at 50 I believe we can really move easier on a dance floor in socks. It’s a day for playfully celebrating and consciously connecting to the energy within, around us and between us. What I eat and what I take each day is very different now to when I was starving the cancer. I will get back to the blog and write some more about the post-cancer choices I’m making post-birthday! x
Nov 2020 1st CTCResults: 10 ml of blood 3.3 CTC/ml incl 1 cluster. Specimen contained single CTC (n= 16), and one cluster of CTC-like cells with 17 nuclei (n=17), total CTC (n=33), suggesting some residual disease activity. The background shows mild to moderate numbers of immune cells and occasional fungal elements. The CTC count is consistent with a mild to moderate increased risk of tumour progression or relapse.
I am thinking this is not too bad. Still room for improvement (especially re. fungal elements) but really great news worth celebrating. I will continue to pause the Zoladex for now and keep up with immune system and anti-inflammatory focus while pulsing the pathways inhibitors.
March 2022 note: I did end up stopping the Zolodex all together – did not go back to it and have continued with Melatonin which is now 60mg a night and every now and then I will pause it for 5 days and then re-start. My tumor markers remain the lowest of all time and all labs are looking really good. White blood cells were terribly low for years but have come back up to the normal range in past few months. I am living a very active pain-free life, practicing Qi Gong and working as a mental health outreach support worker. Having bone scans once a year and next one due in early May 2022.
Bone healing:
Many women who read this blog have a similar diagnosis to me and write to ask me about what I take each day in regards to my bones mets . Here’s my bone healing list of supplements and studies. None are strictly ‘bone only’ and all have multiple anti-cancer targets. In early 2023 for ease when updating I have moved my bone met healing research notes to the new parent site: My Healing Community.
You can now find my bone met healing research notes here.
Great news NO evidence of active disease on my latest PET. I’m into the 8th month now of my break from the Zoladex. My next test will be a circulating tumor cell (CTC) test. Still taking all my breast cancer pathway inhibitors each day. Spending more time away from the breast cancer research and never ending spreadsheets. I am enjoying spending time each day supporting others with their healing thoughts and emotions and looking after the now 10k member strong healing cancer study support group.
I’ve been taking many of the same things I was taking back in June. The dosages have got a bit smaller perhaps on some of the herbs and tincture and lately I have increased my Omega-3 and Olive Leaf Extract. Here’s a list of what I’ve taking the past few months (and the olive leaf extract, Vit B3 and a Methylated B mix is missing from the list-sorry): https://drive.google.com/file/d/1pz2JmB7eT3Tm5H5TZ-a_R2tkLSRI0OLJ/view?usp=sharing
I had a super long yarn with the very lovely Trish Waipouri about my breast cancer journey last week. Trish has been interviewing women with breast cancer as a part of breast cancer awareness month. It’s now up on YouTube. Sorry, it is such long conversation. If you are interested, perhaps bookmark it and listen to it over 3 nights of doing the dishes or something 🙂 I am looking forward to watching more of Trish’s interviews and Trish’s own story about her healing journey.
I played this back today and heard myself say that I was taking 2 x 500g liposomal curcumin capsules 3 times each day however that was not correct. I took 2 x 500mg 3 times a day yes, mg not grams!
C3 Liposomal Curcumin I have learn more about Curcumin and this is the very best we can get.
I chose to stop taking the Zolodex implant. I’ve come to believe that my highly ER+ receptor cancer cells that were in a dormant state for 18months due to their unchanged primary estrogen receptor status, are now active again.
I have not had conventional scans to prove they are active but instead I could clearly feel them become inflamed again like the were in early 2017, about 6 weeks after the last Zolodex implant, late February. I have been addressing this inflammation successfully and will continue to. Some of my upper body are very close to the skin and clearly doubled in size, but since then, inflammation has subsided due to the protocol I’ve been pulling together.
I believe that the 18 month-long largely Zolodex led dormancy state of the cancer cells made the little buggers not 100% reachable with my metabolic healing strategies. I’m giving myself until August 1st to do all I can minus the Zolodex. All things going really well; I get to live Zolodex-free and cancer-free.
“I am now prepared enough to put what I know to work, to work, without the Zolodex.“
I would put this decision down to wanting to engage my whole body in my healing, and see how this serves my overall vitality and health status going forward into old age. It makes most sense to me to use as few heavy handed pharmaceuticals as possible.
My oncologist was not happy about me stopping the Zolodex, however she said she will be happy for me to go back on it if my attempts to do this without Zolodex are not a success. I will have a PET, CT and Bone at the end of July to help me decide my next move.
What I’m now taking each day
So with all the bone met activity I’m feeling again (since stopping Zolodex 3 months ago) I’ve swung back into a stronger healing protocol which for the months of June/July 2020 includes : hydrogen-rich alkaline water, artemisia annua emulsion, chlorella, lemon, walnuts, green apples, pomegranate extract, curcumin, brocolli sprout powder, loads of fresh sprouts, R-alpha lipoic acid, liposomal vitamin C, beta 1,3-Glucan, berberine, grape seed extract, parsley leaf powder, chamomile tea, green tea, danshen, ginger, milk thistle, burdock root, pau d’arco, honokiol, tocotrienols, iodine, magnesium, selenium, zinc, citrus bergamot, astragalus, cats claw, stinging nettle, boswellia, B complex, CoQ10, glucosaminesulfate,fish oil, mini aspirin, D3, K2, niacin, olive oil, nigella sativa, skullcap, hesperidin and melatonin. …( and maybe one of two I’ve missed even!!)
and why I’m taking all of these herbs?
Thanks to the support of my clever friend and stage 4 breast cancer thriver and study buddy extraordinaire Maria Wessling Bachteal I’ve been able to enter everything I’m taking in June/July 2020 into this multi page ER+ breast cancer spreadsheet : Abbey’s_June_July_2020
This spreadsheet is navigated via the tabs at the bottom of each page and is designed to help me see how my chosen supplemental herbs and foods (and aspirin) inhibit cancer’s key metabolic pathways, breast cancer growth factors, fast cell division and how they effects my immune system. The why I’m taking these things spreadsheet link: https://docs.google.com/spreadsheets/d/11aQ3jttXrGnVcDFKWzrbYxoDbwhS9DwSTvNUvHKhrxQ/edit?usp=sharing
Maria supports us all so much with her dedication to organizing the breast cancer research and readers in the USA can support Maria by purchasing your supplements at a discount (USA only) through her Fullscript Dispensary. Email Maria at scsupplements101@gmail.com
Sadly, I am also reducing my 1:1 support hours drastically
I’ve enjoyed directing so much heart-led energy and precious time into supporting others the past year, and now with so much bone met activity returning it is time to walk the talk and return the focus to my own health again as I did so well in 2017-19. Maintaining a NEAD minus the Zolodex means breaking new ground for me and I know deep down this requires much more time and energy then has I’ve been giving myself the past months. I have put on hold gifting any new 1:1 support calls for the months of June, July & August. I have not removed the booking app button but it takes you to a schedule with no available times for the moment. My goal is to have my 1:1 support calls return, as they hold so much purpose value and meaning for me, but for now I need to pull back and fully support myself in regaining some healthy balance between my Zolodex-less bone met healing goals, the support group that is nearly 8k members strong... oh, my Liposomal Vitamin C making service, and of my precious and nowadays emotionally and mentally draining family situation in which my MIL has advancing Dementia and lives with us.
How do manage to take so many things?
I have been buying dried herbal powders and creating drinks/teas which I enjoy and reduce the capsule load. At least 9 of my healing herbs are taken as a drink.
My Daily Healing Tea Pot is looking strange but actually tastes good.
German Chamomile Flowers& Apigenin suppresses the senescence-associated secretory phenotype and paracrine effects on breast cancer cells https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4610175/ Danshen root: Danshen Improves Survival of Patients With Breast Cancer and Dihydroisotanshinone I Induces Ferroptosis and Apoptosis of Breast Cancer Cells. – PubMed – NCBI https://www.ncbi.nlm.nih.gov/pubmed/31736748 Burdock root powder Arctigenin Inhibits the Activation of the mTOR Pathway, Resulting in Autophagic Cell Death and Decreased ER Expression in ER-positive Human Breast Cancer Cells https://pubmed.ncbi.nlm.nih.gov/29436614/ Cats Claw bark Life Extension explore it’s powerful anti-inflammatory and antioxidant effects as well as the support it offers towards DNA repair, joint health, immune function, and normal cell division https://www.lifeextension.com/magazine/2007/3/nu_catsclaw Pau d’arco bark Growth Inhibition of Estrogen Receptor Positive Human Breast Cancer Cells by Taheebo From the Inner Bark of Tabebuia Avellandae Tree https://pubmed.ncbi.nlm.nih.gov/19578798/ Ginger root powder I have been a ginger tea fan forever and find it supports the digestive system while inhibiting cancer. 6‐Shogaol, an active constituent of ginger, inhibits breast cancer cell invasion by reducing matrix metalloproteinase‐9 expression via blockade of nuclear factor‐κB activation https://bpspubs.onlinelibrary.wiley.com/doi/full/10.1111/j.1476-5381.2010.00991.x Licorice root Glabridin, an isoflavan from licorice root, inhibits migration, invasion and angiogenesis of MDA‐MB‐231 human breast adenocarcinoma cells by inhibiting focal adhesion kinase/Rho signaling pathway https://onlinelibrary.wiley.com/doi/abs/10.1002/mnfr.201000148
Tea Directions:
Place all ingredients in a pot. Pour boiling water over and place on stove.
Bring to simmer and with watchful eye leave on gentle rolling simmer for 5 min. It may need lifting off the element to control overheating.
Remove from heat and allow to cool down to a nice easy warm temperature.
Use tea strainer when serving. Reheat a little and consume over the course of the day.
Great to swallow my cancer pathways inhibiting supplements with.
My tea even tastes great with my broccoli sprout and parsley powder mixed through it.
When it’s time to sit down to eat breakfast, lunch and dinner I grab a large, 2 metric cup size glass and into this I place the above tea heated to 70 degrees Celsius and add a heaped teaspoon broccoli sprout powder and a teaspoon of parsley leaf powder.
I am crazy about the Super Sprout (Australian) brand of sulforaphane rich broccoli sprout powder. https://aus.supersprout.co/about-super-sprout/our-research-development/ I encourage you to give it a go and find out how good it tastes. The company’s done their research and invested in leading edge technology to create the very best broccoli sprout powder. I am surprised at how I can add it to almost anything I eat and it tastes good. The Super Sprout manager has kindly given me the green light to share my 15% discount code with readers and study support group members after super-fresh high sulforaphane sprout powder either in Australia or the USA 15% discount code: AbbeyM15 can be applied to purchases both in the Australia store or the USA Amazon store
Chi Gong During practice we focus our mind in a relaxed way. We get our lymph system moving. We strengthen our bones, we circulate life force energy, balance our emotions, stretch our fascia and intentionally bring blood and oxygen to our organs, our muscles and our nerves so they can function at their best. My daily Chi Gong practice is so important to my life and my healing journey. Since social distancing came into place my teacher began offering online classes and courses for a worldwide audience. Learn more about Chi Gong, and what’s now on offer at my teacher’s site: https://www.thechifield.com.au/
Artemisia Annua Each morning before Qi Gong I am take two dessert spoons of emulsified artemisia annua; one at around 3am and one around 6am. I will take every day for the next two weeks and then break for one week and then re-start. I will place my super simple emulsified artemisia annua recipe below and suggest anyone keen to learn more about how to use artemisia annua against cancer cells please join my friend Curt’s Facebook group; Curt Michael – Artemisinin, Cancer and Health Protocols He’s dedicated to sharing support for people exploring the healing benefits of Artemisia Annua.
Artemisia annua extract prevents ovariectomy-induced bone loss by blocking receptor activator of nuclear factor kappa-B ligand-induced differentiation of osteoclasts https://www.nature.com/articles/s41598-017-17427-6
Abbey’s Recipe Emulsified Artemesia Annua
Ingredients:
50g Artemesia Annua, ground leaf
250g Sunflower lecithin powder
750ml Pure water
Directions:
Measure 750ml of pure water into a pot.
Place the 50g of ground Artemesia Annua leaf into the water and place pot on stove.
Bring to simmer and with watchful eye leave on rolling simmer for 90 secondsonly. It may need lifting off the element to control overheating.
Remove from heat and stir gently for 5 minutes with a clean stainless steel stirring device
Allow to cool for 10 more minutes while you prepare the Sunflower lecithin powder (SFLP)
I always start by fine sieving the SFLP into a bowlto remove the lumps, dry rocks and any stray tiny ‘stay-dry’ pillows that are often placed in the product’s packaging.
Place blender jug on scales and re-set scales to zero. Spoon 250g of sieved SFLP into blender jug
and pour in the now semi-cooled tea over the SFLP using a fine mesh strainer*.
*Removes muck in the emulsion -but perhaps you want it?
Blend until 43-45 degree C (equiv. 93-94 F).
How long this takes to reach temp. depends on your blender. You will need a thermometer and be watching closely.
I like to pour (while hot and moving freely) into a sterilized glass jar with tight lid seal that I can stand in a cool place in the kitchen or in fridge.
Food is so important
I’ll finish with some photos of the delicious wholefood that I’ve been lucky enough to be enjoying recently thanks to my super creative and sprout-farming-crazy husband Neil.
keeping a long teaspoon in my crazy warm green tea allows me to stir it and stop all the goodness sinking to the bottom of the glass. Cooking in Turmeric powder makes me feel good about enjoying this small serves of UN-refined carbs.
Okay, enough sitting here, time to move and eat! Abbey
When I think of alive cancer cells, I think of cells that are metabolically active. And then I think well that’s what a PET scan attempts to tell us. This is why I paid out of pocket last year to get my PET scan. I wanted to know if my metastatic breast cancer was metabolically active after 9 months of DIY concentrated metabolic pathway inhibition.
My very conventional oncologist doesn’t seem to give much weight to cancer being seen as active or inactive and refused to write me a referral for a PET scan. She said that PET’s are not accurate enough as far as seeing small stuff. You are stable, and that’s great she said. I went online and found an oncologist who was happy to refer me for a PET scan. ‘Stable” was not the term I had worked hard for. I’m looking for a NED and I would be happy to hear that I was NEAD given that bones do take time to return to normal healthy scar free images on the bone scans. Stable, I’ve been stable for ages.
I had a copy of the PET results sent to my conventional oncologist so she could celebrate with me (not). I guess if she was in my shoes and actually knew how much work and how much time and money I had invested in starving the stem cells she would have been more likely to get behind a PET and be celebrating with me when it came back with a NEAD report. No evidence of active disease. No, she wasn’t impressed one bit but the report did give me an opportunity to argue with her about the language we were going to use going forward. Since the 2 reports. (I had 2, one report done in QLD and in one NSW. My original PET ordered by my QLD surgeon win 2017 was done in QLD and the 2nd in 2019 was done in NSW). I won the argument. No more referring to my condition as stable, She agreed to join me and the report writers in calling it NEAD. She said it made no difference to her. I said it meant everything to me. I tried to explain that stable sounded like I had cancer that was not progressing. NEAD sounds like I have no living cancer cells.
I combined the PET report with her bone scan and CT report and yes there is scar tissue built up on some of my bones, but there are also areas which have cleared and are no longer noted. The cancer had not only caused these build ups but it had taken away bone..these bits I thought of as my Swiss cheese. These have healed. No more Swiss cheese and instead I have new healthy bone. Coming up to nearly 3 years since my stage 4 diagnosis I can happily say..I am way beyond stable; I am healing. I have healed wide spread bone mets ..and my body is amazing and I will keep doing everything I can to support it to stay this way.
I no longer inhibit all the pathways at once to starve cancer these days as I once did. I believe it is no longer there; nothing to be starved. Instead I live very healthy and I focus on caring for my immune system and overall energy and health, incl my hormones ( all new learning curve!!) and mental health. I recently stopped my monthly Zolodex implant that the onc put me on mid 2017. Will tell her I stopped it at next appt. And I no longer take Dipyridamole (DPM). I rarely take the Herpes drug medication I used alongside DPM to get things back on track . I am using herbs and supps instead and have no outbreaks. I am having a pause from Quercetin too just now too and think this is working for me.
I’m still very happy taking/eating daily or cycling: green tea, licorice root and fennel, chamomile, chrysanthemum, ashwaganda, burdock chlorella, chia, green apple, ginger powder, lime or lemon juice, Vit D3, K2, Liposomal Vit C, R-ALA, Curcumin Phytosome with Meriva, Zinc, Magensium, Selenium, Boron, Iodine, Beta Glucan, NAC, Niacin, Mixed B’s, (extra B12 B6 only 2 x week) , Broc Sprout Powder, Grape Seed Extract, High dose Melatonin, Cats Claw, Astragalus, EPA/DHA, Tocopherols, Olive Oil, Eating so well, mostly plant based with more pulses. Chicken in very small portions 1-2 x week and a little red meat every 3-ish weeks . Black seed oil ( but not too much) Hydrogen water, skullcap. Loads of greens and olives and sauerkraut and sprouts. Infrared Sauna 3 x week, Emotional releasing work, 1-2 dog walks a day, Medical Chi Gong movement practice with healing mediation 1 hr each morning.
I continue to find and devour inspiring resources that keep me anchored in the power of the focused mind over the state of the body. Right now I am feeling super happy to have found the book Mind to Matter by Dawson Church. Will post some more about this resource in the group’s thread dedicated to psychological resources for healing cancer.https://www.facebook.com/photo.php?fbid=10156770660276662&set=g.240927233489567&type=1&theater&ifg=1
Goserlin: Zolodex implant each month from oncologist inhibits IGF-1
Berberine: 500mg, 2 x daily, total daily= 1000mg
Loratadine: 10mg daily
Hydroxy Chloroquine: taking approx. 1 week of every 6
Dipyridamole: 200mg slow release Persantin 3 x daily (7am, 2pm, 9pm) daily total = 600mg
EGCG in Green Tea: 2-3 cups each day decaf and 1 x 725mg decaf capsule at dinner.
Curcumin phytosome with meriva: 500mg x 2, 3 x daily = 1500mg with meals
Ursolic Acid inTulsi Tea with meal to wash down curcumin capsules.
Japanese Knotweed aka Hu Zang root powder from which Resveratrol comes Total taken with evening meal, 1 tsp stirred into in the tulsi tea.
My Glucose Pathway Inhibitors
Quercetin: 600mg 3 x daily total = 1800mg
Curcumin Phytosome with Meriva: as mentioned previously.
Liposomal Vit C: currently enjoying 5g (about 30ml) x 2-3 x daily and I have 4 drops of Zinc chelate I water as a chaser.
Melatonin: currently taking 180mg at 7pm ( 3 x 60mg pure melatonin capsules from online supplier Perfect Vitamin- I worked my way up gradually using products on herb)
Metformin also exerts anticancer effects through the inhibition of the Sonic hedgehog signaling pathway in breast cancer and I am not currently taking Metformin https://www.ncbi.nlm.nih.gov/pubmed/25999130
for regulation of WNT signalling, which induces bone metastases in breast cancer, I take
Aspirin: as mentioned previously. Dipyridamole:as mentioned previously. Vitamin D3: 5000IU at breakfast taken with 90mcg Vit-K2 Tocotrienols: Delta fraction 250mg with breakfast as previously mentioned
Hydroxychloroquineefficiently suppresses inflammatory responses of human class-switched memory B cells via Toll-like receptor 9 inhibition. – PubMed – NCBI https://www.ncbi.nlm.nih.gov/pubmed/29981383
Hormone therapies incl. Goserlin which is my monthly Zolodex implant from my oncologist.
Aspirin:as mentioned previously.
Melatonin: as mentioned previously.
Tocopherols: 400IU at lunch each day.
Melatonin is an appropriate candidate for breast cancer treatment: Based on known molecular mechanisms – Amin – 2019 – Journal of Cellular Biochemistry – Wiley Online Library https://onlinelibrary.wiley.com/doi/abs/10.1002/jcb.28832
Postmenopausal women who regularly use aspirin and other analgesics (known as painkillers) have lower estrogen levels, which could contribute to a decreased risk of breast or ovarian cancer.https://www.sciencedaily.com/releases/2010/03/100323133043.htm
for Epidermal Growth Factor (EGF) I am already taking the following
Milk Thistle: as mentioned previously. Berberine: as mentioned previously EGCG: green tea as mentioned previously Curcumin:as mentioned previously
for Interleukins which are linked to progression in breast cancer I am already taking
Aspirin: as mentioned previously
for PPAR I am taking
whichdoesn’t contribute to early stages of Breast Cancer but does contribute to fatty acid oxidation used by cancer in later stages to spread to other organs.
Citrus Bergamot: as mentioned previously Berberine: as mentioned previously Omega-3: In daily diet of chia seeds, walnuts, mackerel, and the cod liver oil mentioned below. Vit -A: 600mg quality refridgerated Cod Liver oil with lunch. Vit-D3: as mentioned previously. Omega -7: 450mg Sea Buckthorn Oil with lunch daily.
Pro-biotic: weekly Sauerkraut: tablespoon each day with meal Raw cacao powder: tablespoon in my breakfast each day.
Liver
Milk Thistle: as mentioned previously. Sunflower Lecithin Liposomal Vitamin C each day as mentioned previously. Food: Fresh Lemon Juice, Green Apple and Spirulina with Chia with Ginger Powder for my first breakfast.
Ant-viral medication
Valaciclovir or Valtrex: Was on 500mg x 1 with lunch, then moved down to 200mg a day..Now on 200mg or 500mg a lot less often.
To learn more about my private online healing cancer study support group and resources website. Please visit my healing community’s home base and resources page: www.myhealingcommunity.com
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